Thank you God! Ayden Pulmonist emailed me good news.

Blood results are in: NO Cystic Fibrosis!!!!

I will copy what she wrote instead of me trying to summarize it…

His complete blood count showed a normal white blood cell count and no anemia. His immunoglobulins (antibodies) are also within normal limits. One type of immunoglobulin (IgG) was high, but when we worry about an immunodeficiency, a higher number is more reassuring. Sometimes the IgG is high during active inflammation/infection, and he’s always sick. His IgE was low, and that’s not a bad thing – IgE is usually high in allergy and asthma. So that’s the one immunoglobulin that we don’t mind being low. The others were in the normal ranges.

Ayden's CF DNA testing was negative. I spoke with our CF center director and she feels that with a negative sweat chloride test and negative CF DNA testing, we can feel comfortable that he does not have CF. There have been some rare patients who have grown Pseudomonas and have none of the mentioned medical problems (CF, PCD, immunodeficiency, lung disease). We just treat the Pseudomonas. I will continue to treat his symptoms and the bacteria from his bronchoalveolar lavage.

I feel confident that he does not have CF. His screening immunoglobulins look good. There are many other tests we could do, but I would like to see if he gets better before running up your medical bill.

Now we have an ENT for Aug 19. We still need to find out why his sleep study showed sleep apnea. His adnoids and tonsils are normal size AND doesn't snore. I read this is called Central Sleep Apnea.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0004404/