At the Ronald McDonald House. The look on her face was priceless when I took her into the playroom.
Getting setup for the sleep study. She wasn't happy. It was an awful night for both of us. I pray that we never have to do it again. It was so uncomfortable!
it was a struggle to put it all on.
Me, trying to calm her down a little
They used some kind of awful, strong smelling hair glue to keep that stuff on.
She looks all beat up. Her left eye lid quickly swelled up. They didn't hurt her or anything. That's the lid with the hemangioma and lazy eye. It's very sensitive.
We will return to Milwaukee in April. The results for both Alex and Elyse will be ready. I'm pretty sure if things look bad, they'll call us in sooner. Keeping our fingers cross for good results.
Alex got a CT scan of his head to see why he's having some hearing loss in his left ear.
He got the lung function test because he complains that his chest feels tight when he exercises.
Elyse got the sleep study because the ENT saw her tonsils and Adenoids enlarged. He's concern that's she's having sleep apnea that could be very bad because of her cardiac history. We never noticed any snoring until he asked. We never heard it through the baby monitor, but one day I stayed in her room and I did hear her snore, it's not loud though.
1 comments:
Hello there! Thank you so much for posting Elyse's sotry. I found your blog through a google alert for Ronald McDonald House. My name is Jacquelyn and I work for the House here in Milwaukee. Elyse is so adorable - and what a trooper! Would you ever be interested in sharing her story? We would be so grateful to learn more about her condition and your experience here at the House. Please contact me when you have a chance - 414-475-5333 ext 115 or jwahlberg@rmhcmilwaukee.org
Thanks so much! I look forward to hearing from you!
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